AFM-Téléthon in the news

Festi'Route is holding its third annual 'Routiers du Téléthon' event on December 5, 2026, in Barbezieux, featuring truck and car exhibitions, entertainment, and activities, with all proceeds benefiting AFM-Téléthon.

A fundraising event for AFM-Téléthon was held in Saint-Laurent-Nouan, featuring a charity bike ride and crepe sales.

AFM-Téléthon highlights the exhaustion of family caregivers due to insufficient professional home care for highly dependent individuals, urging urgent government action and increased wages for home care workers.

AFM-Téléthon organized a conference in Ain, uniting over 200 people to celebrate 40 years of progress in treating rare diseases and discuss future perspectives.

Dorathon association to hold a solidarity day on October 17, featuring sausages cooked in a still to raise funds for AFM Téléthon's research into rare diseases.

Various associations and local officials met to organize the upcoming Téléthon in Saint-Georges-d'Orques, focusing on fundraising for genetic research.

AFM-Téléthon is constructing a 23 million euro medico-social center in Angers, France, set to open in 2028, to support individuals with progressive diseases and high dependency.

Félicie, suffering from calpainopathy, highlights the urgent need for accelerated research by AFM-Téléthon's Généthon laboratory into gene therapy for rare neuromuscular diseases, appealing for support for the 40th Téléthon.

AFM-Téléthon's national president discussed the association's history, future prospects, and celebrated medical advancements in treating rare diseases at a conference in Saint-Maurice-de-Beynost.

AFM-Téléthon launched its 2026 campaign in Aix-les-Bains, emphasizing the urgent need for research and diagnosis for unknown rare diseases, exemplified by a child's degenerative condition.

Angers Loire habitat is investing 23 million euros to develop the AFM-Téléthon's Grand-Ouest Pole, a medical-social facility for people with chronic diseases, set to open in Angers in 2028.

The 40th Téléthon campaign in Creuse launched, highlighting medical advancements in rare diseases and the significant local mobilization for fundraising and support.

Intermittent positive pressure ventilation with an Alpha 300® shows promise in stimulating chest growth and preventing deformities in young patients with spinal muscular atrophy type I.

AFM-Téléthon organized regional family days to support individuals with rare neurodegenerative diseases, share research advancements, and advocate for accessibility, culminating in the launch of the 40th Téléthon.

Research into Glycogen storage disease type III is advancing with gene therapy development, biomarker identification, iPSC models, improved care guidelines, and physical activity benefits being explored.

Local associations in Saint-Servant-sur-Oust are holding a karaoke night and a fest-noz to raise funds for the AFM-Téléthon's medical research.

The president of AFM-Téléthon is conducting a nationwide tour to meet volunteers and report on the organization's achievements and challenges to the public.

AFM-Téléthon invites French municipalities to purchase and display a "Ville 40e Téléthon" sign to show support for the 40th Telethon.

A solidarity day for AFM-Téléthon, including a ‘6 h solidaires’ event at the Hippodrome de Vire and the resumption of boccia activities, is being organized by Serge Cordon.

Olivier Guyot is walking over 600 km to raise money for AFM-Téléthon, inspired by his son's muscular dystrophy.